Welcome to Kidneeds
Kidneeds is a not-for-profit corporation founded by a family affected by Dense Deposit Disease (DDD). DDD is also called MPGN type 2, which stands for Membranoproliferative Glomerulonephritis type II. DDD is a kidney disease that mainly affects children, although adults are also affected. About half of all persons with DDD go into kidney failure 10 years after diagnosis; these persons require dialysis or transplantation to stay alive. The disease recurs in nearly all transplanted kidneys, and about 50% ulitmately fail. There is currently no effective treatment for DDD.
Kidneeds' mission is to stimulate research by funding grants to scientists to study DDD. Kidneeds is also an educational resource for physicians and patients. Patients and their families can help us learn more about DDD by completing the:
This survey collects epidemiological data on persons with with DDD and also other types of MPGN.
The Fourth Annual DDD Focus Group Meeting in Leiden was held on August 19th. Participants, shown here, had lively discussions about research initiatives needed to advance the care for persons with DDD.
The 2011 DDD Family Meeting was held on Saturday, October 29th, 2011 at the University of Iowa, Iowa City, IA. Fifteen families attended, coming from around the USA and England. If you are interested, you can listen to the morning session and the afternoon session.
NOTICE: A commercial web site uses a name very similar to KIDNEEDS. The commercial site is in no way associated with KIDNEEDS, nor does KIDNEEDS benefit from the sale or purchase of items from that web site.
