Mental Retardation and Developmental
Disabilities:
A Resource List
Prepared by Mary Hubbard, DRL Librarian
Negotiating the Special Education Maze: A
Guide for Parents and Teachers, 3rd edition.
Anderson, Winifred, et al. Bethesda, MD: Woodbine House, 1997. Book, 264
pages, ISBN 0-933149-72-7.
The special education process is often daunting for beginners. This book can help.
Steps to Independence: Teaching Everyday
Skills to Children with Special Needs, 3rd edition.
Baker, Bruce L., et al. Baltimore, MD: Paul H. Brookes Publishing, 1997.
Book, 392 pages, ISBN 1-55766-268-1.
Tasks your child can do at various developmental stages to encourage independence and self-esteem.
Your Child Has a Disability: A Complete Sourcebook
of Daily and Medical Care
Batshaw, Mark L. Baltimore, MD: Paul H. Brookes Publishing, 1998. Book,
368 pages, ISBN 1-55766-374-2.
Sound advice from an expert pediatrician on raising a child with developmental or physical disabilities.
A Family Handbook on Future Planning
Berkobien, Richard. Arlington, TX: The Arc, 1991. Book, 133 pages.
Financial and estate planning for families of individuals with mental retardation.
Goin' Mobile: Portraits of Young Adults with
Disabilities in Transition
Lawrence, KS: Kansas Transition Systems Change Project, 1995. Video, 40
minutes.
Five young people with disabilities successfully make the transition from school to adult life. Issues related to both developmental and physical disabilities are discussed; the questions are appropriate for any transition situation.
Retarded Isn't Stupid, Mom! (revised
edition)
Kaufman, Sandra Z. Baltimore, MD: Paul H. Brookes Publishing, 1999. Book,
272 pages, ISBN 1-55766-167-7.
A young woman with mental retardation grows up to take her place in the community.
A Family-Centered Approach to People with
Mental Retardation
Leal, Linda. Washington, DC: AAMR, 1999. Book, 53 pages (Innovations,
v.15), ISBN 0-940898-59-4.
Focuses on diversity in the context of individual and family strengths.
The Special Child: A Source Book for Parents
of Children with Developmental Disabilities , 2nd
edition
Pueschel, Siegfried M., et al. Baltimore, MD: Paul H. Brookes Publishing,
1995. Book, 464 pages, ISBN 1-55766-167-7.
Addresses the concerns parents have about medical, emotional, and financial affairs.
The Road You Take Is Yours
Verona, WI: Attainment Co., 1997. Video, 19 minutes.
Emphasizes the importance of decision-making skills for the young adult with developmental disabilities. Deals with finding a job, independent living, and getting married.
Sexuality and Your Sons and Daughters with
Intellectual Disabilities
Schwier, Karin Melberg and Hingsburger, Dave (Eds.) Baltimore, MD: Paul
H. Brookes Publishing, 2000. Book, 240 pages, ISBN 1-55766-428-5.
A new guide to help parents talk to their child about sexuality and intimacy.
Children with Mental Retardation: A Parents'
Guide
Smith, Romayne. Rockville, MD: Woodbine House, 1993. Book, 437 pages,
ISBN 0-933149-39-5.
An essential book for parents. Plenty of helpful information.
The Complete IEP Guide: How to Advocate for
Your Special Ed. Child
Siegel, Lawrence M. Berkeley, CA: Nolo Press, 1999. Book, 300 pages, ISBN:
0-87337-408-8. Berkeley, CA: Nolo Press, 1999. 300 pages. ISBN: 0-87337-408-8.
A powerful advocacy resource written from the parents' perspective.
Laying Community Foundations for Your Child
with a Disability: How to Establish Relationships that Will Support Your
Child after You're Gone
Stengle, Linda. Rockville, MD:Woodbine House, 1996. Book, 217 pages, ISBN:
0-933149-67-0.
Tips from a care consultant on how to set up a supportive safety net for your child with special needs.
Older Adults with Developmental Disabilities:
Optimizing Choice and Change
Sutton, Evelyn, et al., (eds.) Baltimore, MD: Paul H. Brookes Publishing,
1993. Book, 416 pages, ISBN 1-55766-120-0.
Insights on health, lifestyles, transitions, living arrangements and service trends.
Differences in Common: Straight Talk on Mental
Retardation, Down Syndrome, and Your Life
Trainer, Marilyn and Featherstone, Helen. Rockville, MD: Woodbine House,
1991. Book, 231 pages, ISBN 0-933149-40-9.
Observations on family adjustments and societal attitudes.
Disability and the Family: A Guide to Decisions
for Adulthood
Turnbull, H. Rutherford, et al. Baltimore, MD: Paul H. Brookes Publishing,
1989. Book, 417 pages, ISBN 1-557-66004-2.
A classic text that answers questions concerning the future needs of the individual with disabilities. Emphasizes individual choices.
Toilet Training for Individuals with Autism
and Related Disorders: A Comprehensive Guide for Parents and Teachers
Wheeler, Maria. Arlington, TX: Future Horizons, 1998. Book, 122 pages,
1-885477-45-7.
Strategies to help people with autism and related disorders successfully and independently manage their own toileting.
Periodicals
Disability
Resources Monthly
Four Glatter Lane
Centereach, NY 11720
Phone: (516) 585-0290
A monthly newsletter chock-full of what is newly published or produced for people with disabilities and their families. The DRM Web site is also a valuable source for links to national, state, and local disability interest groups.
Exceptional
Parent
555 Kinderkamack Rd
Oradell, NJ 07649
Phone: (201) 634-6550
An excellent magazine for any parent of a child or a young adult with disabilities. Not to be missed: a four-part series on financial planning in the 1999: February-June issues.
Each January Exceptional Parent (EP) consists
of the annual resource guide, a valuable handbook to state and national
organizations, products, and services. EP Library regularly markets quality
books on disabilities in the magazine, or see their online site at: http://www.eplibrary.com.
Web Sites
American
Association on Mental Retardation (AAMR)
http://www.aamr.org
National research organization that publishes important
information in the field of mental retardation, including the Web document,
"Shaping Our Destiny." http://www.aamr.org/ShapingOurDestiny/index.shtml
The
Arc of the United States
http://www.thearc.org/
An advocacy, information, and referral resource on mental retardation issues.
Council for Exceptional Children (CEC)
http://www.cec.sped.org
A forum for education issues affecting children with developmental disabilities. The council publishes two highly-respected journals, Exceptional Children and Teaching Exceptional Children. Also home to the powerful ERIC database that allows you to search educational issues via the Internet.
Family Village
http://familyvillage.wisc.edu/index.htmlx
Connections to information, organizations, chat groups, and e-lists.
National Information Center for Children
and Youth with Disabilities (NICHCY)
http://www.nichcy.org/
A host of valuable publications, in Spanish and in English, that can be downloaded from the site or ordered by mail from NICHCY.
Find more information about this subject in the online catalog of our Disability Resource Library.
