Cerebral Palsy:
A Resource List
The Becky Ritter Story
Gillette Children’s Specialty Healthcare. Video, 1996, 20 minutes.
A successful young woman talks about growing up with cerebral palsy.
Handling the Young Cerebral Palsied Child
at Home, 3rd edition
Finnie, Nancie R. Book, 1995, 306 pages.
Tips for parents to maximize the potential for independence in their child’s movements and activities.
Children with Cerebral Palsy: A Parents’
Guide, 2nd edition
Geralis, Elaine, (ed.). Book, 1998, 434 pages.
A dependable guide for parents, with an appendix of excellent resources.
The Other Side of Therapy: Disability, Normalcy,
and the Tyranny of Rehabilitation
Kunc, Norman. Video, 1993, 120 minutes.
Norman Kunc explains how coming to terms with his cerebral palsy has enlightened him about the value of his body and of everyday life.
Stretching Ourselves: Kids with Cerebral
Palsy.
Carter, Alden R. Book, 2000, 35 pages.
This pictoral essay for children takes us through the daily lives of three active children with varying degrees of cerebral palsy.
Rolling Along: The Story of Taylor and His
Wheelchair.
Heelan, Jamee Riggio. Book, 2000, 29 pages.
Taylor's world opens to new possibilities when his physical therapist introduces him to a wheelchair. A wonderfully illustrated book about determination.
The Story of the Stranger
Kunc, Norman. Video, 1993, 60 minutes.
Norman Kunc delivers a lively presentation to a high school audience on what it is like for a person with cerebral palsy to attend regular high school, and how students can relate to one another no matter what their mindset.
Cerebral Palsy: A Complete Guide to Caregiving
Miller, Freeman and Bachrach, Steven J. Book, 1998, 488 pages.
Three books in one: A handbook on the many aspects of cerebral palsy, a guide to caregiving techniques that focuses on health and security issues for both consumer and the caregiver, and a cerebral palsy encyclopedia that introduces readers to the complex terminology of cerebral palsy.
Step by Step: Real Life Experiences with
Cerebral Palsy
Rose, Colleen. Book, 1995, 102 pages.
A mother’s vignettes and practical tips on raising a daughter with cerebral palsy.
Growing Up with Cerebral Palsy
Smith, Mark E. Book, 1995, 140 pages.
A young man defies expectations to become a scholar and a writer.
Each of Us Remembers: Parents of Children
with Cerebral Palsy Answer Your Questions
Weiss, Sally and Hunt, Mimi. Book, 1993, 34 pages.
A booklet filled with parental advice and observations.
Periodicals
Disability
Resources Monthly
4 Glatter Lane
Centereach, NY 11720
Phone: 516- 585-0290
A monthly newsletter chock full of what is newly published or produced for people with disabilities and their families. The DRM Web site is a valuable source for links to national/state/local disability interest groups.
Exceptional
Parent
555 Kinderkamack Rd.
Oradell, NJ 07649
Phone: 201-634-6550.
An excellent magazine for any parent of a child or a young adult with disabilities. Their six-part series, "Positive Perspectives on Cerebral Palsy," in the 1999:March-August issues, is not to be missed.
Each January issue consists of the annual resource
guide, a valuable handbook to state and national organizations, products
and services. The EP Library regularly markets quality books on disabilities;
see their online site at http://www.eplibrary.com.
Web Sites
MEDLINEplus:
Cerebral Palsy
Frequently updated links to authoritative sources.
Mi
Pediatra: Informacion Relacionada con la Salud de los Ninos.
Spanish language materials that deal with cerebral palsy and general health
concerns.
Family
Village: A Global Community of Disability-related Resources
Chat groups, mailing lists, web boards, general information, contacts,
and links to resources.
New
York Online Access to Health (NOAH): Cerebral Palsy
Informative sites drawn together to provide an overview of cerebral palsy.
National
Institute of Neurological Disorders and Stroke (NINDS)
This agency oversees cerebral palsy research for the federal government,
and provides information about cerebral palsy in English and in Spanish.
United
Cerebral Palsy
Advocacy, resources, state affiliates, and links to helpful Web sites.
Find more information about this subject in the online catalog of our Disability Resource Library.
